I have been suffering from chronic headaches (I may have mentioned this in a previous post) for the last month or so. They are very specific: the type of pain is the same, the location of the pain is the same, etc. Usually when I get these headaches, it means I need an increase in my
Lyrica dosage (for some reason, my body tends to build-up a tolerance to medication very quickly). Well, I now take the maximum dose (200 mg, three times daily...which is doing absolutely nothing for my waistline, by the way...), so an increase is out of the question. When I brought this up to my pain management doctor (Dawn Nehls), she thought that we should try to treat the headache pain. I've been on midrin, fiorinal and amitriptyline, but nothing is working to relieve the pain. My doctor suggested that she should refer me to a neurologist, because she doesn't know what else to do.
Well, today I saw said neurologist and it was a complete waste of time. The guy treated me like a seeker. I even told him that I haven't taken any narcotic pain killers in at least four months because I hate the way they make me feel. He said that I should titrate off the medicine I take and that since I'm young, I shouldn't have the neurostimulator implanted, either. He pretty much told me I should do the opposite of the management plan Dawn and I have worked hard to tweak over the last seven years. He asked if the headaches happen after migraine triggers (chocolate, alcohol, etc.) or if they make me feel nauseated and they don't. He asked if I'm depressed or anxious about my pain and I told him no, to which he replied that my pain "can't be too serious, then". Wait...so...because I'm not reacting to something I have no control over and cannot change, I don't want pain relief? Really?? He told me that our bodies do miraculous things and that I should exercise more and my body will heal itself. Okay, I know I don't make six figures a year, nor do I have a fancy medical degree, but even I know that cartilage does not regenerate. That's why osteoarthritis exists. So...I can exercise until I'm the fittest woman on the planet...I'm
still going to be in pain because I will
still be without cartilage in my right ankle. This is what makes me angry about my situation...people who don't have real pain go to the doctor for pills and they ruin things for those of us whose pain is very real and very debilitating. I felt like I wasn't being heard during my appointment (marked by the fact that he asked me the same questions four or five times--which also makes me feel like he thinks I was making stuff up...like he was trying to trip me up or something). So...I guess I'm going to call Dawn on Monday and ask for a referral elsewhere. So frustrating...
After my appointment, I sat in my room, trying to think of possible next steps with this whole thing when it hit me...I couldn't really accurately describe my headaches before...but I thought of it: it feels like I have an ice cream headache (or brain freeze, if you will) all day long. Out of curiosity, I googled "ice cream headache" and discovered the medical term for them is sphenopalatine ganglioneuralgia.
Sphen/o refers to the sphenoid bone, one of the bones that comprises the cranium.
Palatine means relating to the palate. "Sphenopalatine" just describes the location/origin of the headache and wasn't nearly as applicable as "ganglioneuralgia".
Gangli/o refers to ganglion, which is a group of nerve cells forming a nerve center, especially one located outside the brain or spinal cord.
Neur/o pertains to nerves and
-algia means pain (Look! My medical terminology course is already paying off!). I have peripheral neuropathy, which is why I take Lyrica in the first place. Is it merely coincidence that when my body is withdrawing from Lyrica, I have these sphenopalatine ganglioneuralgia-esque headaches (that was a mouthful!)?!? Also, I came across something called "cervicogenic headaches", which is a headache that is caused from a problem in the spine (such as neuropathy, maybe?). Cervicogenic headaches are also associated with pain, numbness, or weakness of the lower extremities (such as my ankle?), especially if the spinal cord or spinal nerve roots are involved. Cervicogenic headaches most commonly occur in adults and are not usually associated with nausea, vomiting, visual or hearing changes, and auras. I'm thinking I may have just diagnosed myself (not to sound like a total hypochondriac...).
Now...if only it were Monday so I could talk to Dawn!
Always,
Stina